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We slept in a bit but are up. I gave William some motrin and he is playing. Definitely a 2 cups of coffee morning for me! I guess we’ll switch over to his loratab in the afternoon. He can be so stoic that it is hard to tell when he is in pain. He definitely said ‘ow’ some last night though I’m just not going to try to figure him out, be preventative up front.

It was an okay day and everything seemed to be going alright. ARC of Franklin put me in contact with the United Cerebral Palsy equipment room which loans an assortment of wheelchairs and things. They do have 2 car seats but they are both checked out right now. Greg and I will go on his lunch tomorrow and look to see if there is anything we might could use. William did fine and played and we had a good time until late afternoon.

A package came from Great-Grandmomma Williams and William enjoyed playing with his ribbeting frog. He and MaryVic both played with her light-up mermaid pen. One minor crisis when William had it and refused to give it back. What a two-year old not wanting to share??

He took a short little nap around 1p.m. He got really mad about not being able to outside. “No William, the snow will get your cast wet and it is really cold!” Logic and two year olds… He had a tantrum pretty much and I took him upstairs. He fell asleep again for 45 minutes and then wanted to be with momma the rest of the evening. He would perk up and then fall into a bad mood again. I got both kids down and in their respective beds (whoo-hoo!). I had given William a dose of tylenol after his sponge bath. He was fussing on and off about being ‘stuck!’ prior to falling asleep. William woke up screaming. Changed the diaper and got him sleepy again. Tried to put him back in his crib and he woke and wailed. ‘No, Don’t!’ stated repeatedly. Really sobbing. I picked him up and he pretty much stayed with me the rest of the night. I got him back to sleep and we tried one more time to get him in the crib but he woke up screaming. We gave him another dose of pain medicine after midnight and then just tried to make the best of it. He was fussy all night aside from the fact he takes up a whole side of the bed himself now. Maybe Thursday night will go better. Will keep him dosed most of tomorrow and see if that helps. *yawn*

Monday was a pretty full day. We’ve talked to a pretty large number of people, including the Daycare. I’ll put that discussion in a separate post later after we’ve had time to digest everything.

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This was in the “What’s going on here” post, but I’m going to separate it out so that I can sticky that post at the top for a while.

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William starts fussing and when I wake up, it is morning. I get up and straighten him. He is pushing at his cast and yelling, “I stuck, I stuck!”. I have to smile ruefully as I tell him, “Yes honey, you sure are.” I get him changed and downstairs. After we try a few things and have a discussion, despite his concerns he goes on his tummy. He has since fallen asleep again and Mary is with me snuggled in at my side. Hopefully today will go smoother than last night.

Bowel update… He had a movement Sunday night, but frankly we were too tired to do much more than change it and try to get back to sleep.

William was up at 4:30am this morning screaming his head off. He’s doing well, all things considered, but sometimes you just wish he’d sleep.

Ah, Friday night. A long week, trip to Mexico through a monsoon season delay ridden Houston, but it’s finally FRIDAY!

So, let’s spend Friday Night at …. The Vanderbilt Children’s Hospital’s Operating Room!

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*yawn* Is that William crying? What time is it? Five a.m. William is really fussing this time so I scooped him up went on downstairs, changed him, set the timer for 2 hours, and held him until he fell asleep again. I dozed off too and woke when the alarm went off. Made another pillow station, changed him, started a cup of coffee, and set the timer again. We played for a while. He seemed okay so I didn’t give him any more pain medicine. Still didn’t want anything to eat but was thirsty.

MaryVic got up and played with her webkinz and on the computer. I found a website, http://www.hip-baby.org/entertainment.html, which gave me the idea for setting William up in a chair. He had a fit to be in it as soon as he saw it. The kids had some cereal and played some more. Mary is generally good around William but still give us small heart attacks playing around William. She has to be reminded that William is hurt and to be careful which I’m sure is going to be repeated many times over the next 6 weeks. She also is helpful and sweet at times which makes us so proud of her.

My mother comes to visit and check on the babies. They are thrilled to see her. We talk and play. Mom helps keep William entertained during tummy time which he doesn’t so much like as need. Maybe when he has built up the upper body strength to do more. Mom doesn’t try to lift him and seems amazed at the new level of care. Just when you have diaper changing down to an art, it goes to a multi step process, remove pad, diaper, wipe, new pad, diaper and fasten the pullup over it all.

William is very talkative and playful today. MaryVic demands her share of attention with Nana and is bouncing all over the place. While Nana is here, Greg runs out to try to find a bean bag and get a few things.

Greg returns with the hit of the day, Otters chicken tenders. I pull one apart and put on a plate for William. He sees it and grabs the plate. Starts chomping down on it. Nana runs and tears up another one for him. We are thrilled to finally see him eating. Mary tries to get away with eating only french fries and ketchup but everyone is wise to her and she has to eat some chicken too.

Our friends who kept Mary while we were at Vanderbilt stop by to check on us and have some new toys for William. They are wonderfully kind and the children are thrilled with the Little Einsteins toys. Mary tells them thank you and blows kisses to them. They both love the sliding toys to make music and Mary absconds with the character toys but William gets to keep Leo.

After lunch, Greg gets a call from his boss and Nana leaves. Mary and I wave bye to her and head inside. Just before Nana left we found a spot where our little black ant friends have intruded inside again so I have to clean that up. Greg finishes his call and relocates the kids upstairs so I clean, spray, and growl in private. We’ve had the house sprayed, sprayed it ourselves and these little home invaders keep coming.

The kids do enjoy the change of scenery though and play well upstairs. William falls asleep and I run out to Kroger. I wake him changing him when I return and it’s time for tummy time again. I have difficulty getting him situated and he fusses in pain. Greg comes and we are able to get him comfortable on a body pillow where he can see the tv and play. Mary runs downstairs with me to pick out some toys for William to play with while on his tummy.
Cheese sticks for dinner although William doesn’t seem hungry again. MaryVic tears around the room in circles. Obviously she is going to need some more activity on Monday. Finally we have to tell her to stop and she just skirts a time out for not minding. She does have one tantrum that night and cries for me. Unfortunately William is sitting in my lap eating so I can’t go get her and she left the room on her own accord. Greg goes and tells her to come back when she calms down, no one is mad at her, she is the one who left and is the one who can come back. She comes back, snuggles in at my side. All is well again.

I run baths for the kids. Start multiple trips up and downstairs trying to remember what all I need for bedtime. Greg puts William on the bed and I start his sponge bath. After I manage to get his shirt off which he was convinced was the best shirt ever and pouted about the removal, we had fun and he enjoyed the damp washcloth hat, practically washing his own hair. Once he was cleaned up and situated, I went and played with Mary who had gotten into her bath all on her own. Got her cleaned and out.

Baby snuggles, Mary to Greg and I’m snuggling William as best one can. Mary falls asleep first. William parties for a while. Greg gives him dose of pain medicine. Aunt Janie calls and while I’m talking with her, William is taking his hand “Up!” putting it on my shoulder, and “Wheee!” sliding it down over my chest. Momma playground. He tells me a story, not that I understand but it’s obvious something is being explained. We sing itsy bitsy spider and watch how it’s made, boat, clock, with lots of “wow!”s. Finally he is asleep.

We get him changed and into the crib. This night doesn’t go as smoothly as Saturday night. He wakes several times, crying. Greg gets up with him the first time and then I sit with him until he falls back asleep. One of the times I’m soothing William down I hear Mary’s footsteps and go back to bed to find her snuggled in next to Greg. Finally William really wakes up and is crying, “Up!”. I’m surprised that he is waking so much with the pain medicine. I don’t know what’s wrong and quickly toss things around on the guest bed. I pick him up and he lays his head on my shoulder and quiets. I get him on the guest bed and lay down with him. He snuggle in and falls asleep again. Finally I adjust and go back to sleep myself.

We decided to move Greg’s car out of the garage and only have the van in there to facilitate the easier removal of William from the car. Greg carried William in and we settled in the den with our first pillow station. We changed him and set the timer for 2 hours.

We took turns getting cleaned up. Greg worked on the light switches and I wound holding William while he napped for a large part of the afternoon and napping myself. We talked to family which led to the blog after having repeated the story several times.

We ordered in pizza and ate. Then went upstairs to bath Mary and head to bed. William became upset when Mary got a bath and he didn’t. Got him distracted while Greg cleaned Mary up. William saw Greg playing with Mary and then wanted his turn to be flipped upside down which couldn’t happen. William took a dose of pain medicine and Mary took a dose of cold medicine. We finally got settled and watched 2 shows. TV wentoff and both kids slipped off to dreamland.

Greg moved Mary, fixed William’s crib and then came back for William pillow and all. It worked really well and he slept all night in the crib aside from an few instances of fussing. He had tiger and a sippy so he was easily soothed back down with a head rub. It took a bit for Greg and I to unwind enough to sleep but we finally passed out after he worked on the blog for a bit.

Saturday brought Jeff and I some interesting cricks from sleeping on a sub-twin slide out couch bed. All things said, it was still much better than the instrument of torture that Williamson Medical put me through during the births.

But who cares about us? It’s all about William. And rightly so.

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We arrive at Vanderbilt. I pull up to the emergency room entrance, and let Jeff get out and pull William out. He had slept the entire way up, so this wasn’t exactly welcome from his standpoint.

Jeff takes him inside the Emergency room while I race into the adjoining parking garage. They tell me later that I should have left the van outside and let the valets take care of it. I didn’t see any, and didn’t know about it then, but it all works out. By the time I find a spot and get back to the ER, Jeff is in a wheelchair with William in her arms about to be rolled back.

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